Browsing by Author "Sertpoyraz, Filiz Meryem"

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COVID-19 ve Kas Distrofili Hastalar: Pandemi Hastaları ve Tıbbi Bakımlarını Nasıl Etkiledi
(2024) Sertpoyraz, Filiz Meryem; Tanigor, Goksel; Baydan, Figen; Tunçay, Bakiye; Kale, Murat Yildirim
Amaç: Bu çalışma, düzenli hastaneye yatış ve takip gerektiren musküler distrofi hastalarında Koronavirüs hastalığı-2019 (COVID-19) ile ilgili sokağa çıkma kısıtlamalarının ve pandeminin etkilerini araştırmayı amaçladı. Ayrıca bu etkiler üzerinde “COVID-19 korkusu”nun etkisi de ölçüldü. Yöntem: Nöromusküler hastalıklar üçüncü basamak kliniğine başvuran 105 musküler distrofi hastası değerlendirildi. Hastaların sosyo-demografik ve klinik özellikleri kayıt altına alınarak, “COVID-19 korku ölçeği” ile COVID-19 korkuları değerlendirildi, pandemi ve karantina sürecinde karşılaştıkları sorunlar sorgulandı. Bulgular: Hastaların sağlık hizmetlerine erişiminde, fizik tedavi/rehabilitasyonda önemli kısıtlamalar olduğu, fiziksel aktivite ve sosyal aktivitelerinde azalma olduğu saptandı. Üstelik pandeminin getirdiği değişikliklerle hastalıklarının kötüleştiğini sübjektif olarak belirtmişlerdir. Bu kısıtlamaların COVID-19 seviyelerinden duydukları korku ile ilişkili olduğu bulundu. Sonuç: Musküler distrofili hastaların fiziksel aktivitelerinde değişiklik, rehabilitasyona katılım, sağlık hizmetlerine ulaşmada sorunlar ve sosyal sorunlar yaşadıkları saptanmıştır. Bu sorunların COVID-19 korkularıyla ilişkili olduğu tespit edildi. Bu hastalar için sağlık ve tedavilere rutin erişimleri çok önemli olduğundan, hem hastalar hem de sağlık çalışanları kısıtlamaların olası zararlarını ve korkularını akılda tutmalı ve optimal çözümler için çaba göstermelidir.
Duchenne Muscular Dystrophy Patients Diagnosed at the Asymptomatic Stage: What Are the Benefits of Early Diagnosis
(Turkish Society of Physical Medicine and Rehabilitation, 2025) Sertpoyraz, Filiz Meryem; Tanigor, Goksel; Baydan, Figen; Kale, Murat Yildirim; Tanigoer, Goeksel
Objectives: This study aimed to demonstrate whether a diagnosis given at the asymptomatic stage of patients with DMD can affect the clinical outcomes and to define the clinical characteristics of the patients. Patients and methods: The cross-sectional study was conducted with 136 male patients (mean age: 8.8±3.7 years; range, 3 to 17 years) with DMD between March 2022 and February 2023. The patients were diagnosed through clinical presentation, pathology studies, and genetic testing. The demographic, clinical, and the laboratory data of the patients were recorded. The patients were evaluated in two groups: those diagnosed at the asymptomatic stage due to elevated creatine kinase (CK) and those diagnosed due to clinical symptoms. Patients were further stratified according to their age groups: those younger than 10 years and those aged 10 years or older. Hand grip, quadriceps muscle strength, and Vignos and Brooke motor functional assessment scales of the two groups were compared. Results: In patients who were diagnosed with CK levels, CK elevation was significantly more common than other findings. When the age at diagnosis was evaluated, the age at diagnosis in those diagnosed with CK levels was statistically significantly lower than in those diagnosed with clinical findings. No significant difference was detected in clinical findings between the groups under the age of 10 years. Among patients aged 10 years or older, hand muscle strength, quadriceps muscle strength, and Vignos and Brooke motor function scale scores were significantly better in those diagnosed with CK levels compared to those diagnosed with clinical findings. Conclusion: This study shows that early diagnosis in the preclinical period, which enables earlier medical treatment and rehabilitation, may have a positive effect on motor functions and the course of the disease.
Evaluation of Dysphagia and Associated Factors in Patients With Neuromuscular Disorders: Do the Oral Factors Deserve Some Focus Too?
(2024) Sertpoyraz, Filiz Meryem; Tanigör, Göksel; Doğan, Zeliha
Aim: Dysphagia may occur during neuromuscular disorders. As it may cause serious morbidity and mortality, it is important to define the characteristics and burden of this problem among these individuals. This study aimed to evaluate the dysphagia status and associated factors in patients with neuromuscular disorders in a tertiary care center. Material and Method: Two-hundred fifty-two patients in the three groups were included in this study (59 Duchenne or Becker muscular dystrophies (DMD-BMD), 130 other muscular diseases, and 63 neuropathies). The patients were carefully assessed clinically, and their dysphagia status was evaluated using the EAT-10 questionnaire. Dysphagia prevalence was defined for each diagnosis, and patients in each group were compared in terms of their clinical characteristics, depending on the presence of dysphagia. Results: The prevalence of dysphagia was 17%, 18.4%, and 47.6% in the DMD-BMD, other muscular diseases, and neuropathy groups, respectively. Moreover, dysphagia was associated with worse ambulatory status, poor oral hygiene, dry mouth, dental implants, and pneumonia (p<0.05). Conclusion: Dysphagia is an important problem in neuromuscular diseases and requires inquiry and assessment by caregivers and clinicians. Studies focusing on more detailed evaluations, especially for oral health status, and the effectiveness of possible treatment methods will improve this problem.
Work-Related Musculoskeletal Pain in Hospital Employees
(2024) Sertpoyraz, Filiz Meryem; Altaş, Elif Umay; Tanıgör, Göksel; Han, Esra; Esra, Han
Aim: Work-related musculoskeletal disorders are common health problems in the community. They lead to various levels of pain, loss of function, and deterioration in quality of life. Our aim is to evaluate work-related musculoskeletal pain in hospital employees and factors that could prevent this problem. Material and Method: Female and male hospital employees working in different departments of our hospital participated in the study. Demographic data, work and working environment, ergonomic training, and musculoskeletal pain were queried. The severity of pain in those experiencing it was assessed using the visual analog scale and the Nordic Musculoskeletal Questionnaire. Results: A total of 275 individuals participated in the study. 72.4% of the participants were female and 27.6% were male. 79.3% of the participants reported musculoskeletal pain. Pain was most commonly (71.3%) observed in the 35-54 age group and was of moderate severity. According to the frequency of pain, it was most common in the back (61.5%), followed by the lower back (55.6%) and neck (53.5%) regions. The presence and severity of pain were more pronounced in females (p<0.05). There was a statistically significant relationship between the presence of pain and female gender (p=0.003, r=0.179). Pain severity was higher in females (p<0.001, r=0.226). 69.8% of healthcare workers reported that ergonomic arrangements were not made in the hospital, and 81.4% reported not receiving training in ergonomics. Conclusion: Work-related musculoskeletal pain was highly prevalent among hospital healthcare workers, and it was found that healthcare workers did not receive ergonomic arrangements in their work environments or education on protecting the musculoskeletal system. Inference: We believe that making ergonomic adjustments in the work environments of hospital employees, providing education on musculoskeletal system protection, and integrating these into the quality system would be important.