Please use this identifier to cite or link to this item:
https://hdl.handle.net/20.500.14365/2085
Title: | Pediatric liver transplant patients' transition to adulthood: Patient and parent experiences | Authors: | Ordin, Yaprak Sarigol Karayurt, Ozgul Unek, Tarkan Astarcioglu, Ibrahim |
Keywords: | adolescent liver transplantation experience parents of liver transplant patients pediatric liver transplantation qualitative research transition to adulthood Medication Adherence Single-Center Recipients Outcomes Adolescents Care Nonadherence Management Kidney Family |
Publisher: | Wiley | Abstract: | This qualitative research study describes the experiences of child and adolescent liver transplant recipients and their parents during the patients' transition to adulthood. Data were collected from pediatric liver transplant recipients and their parents during individual interviews, and these were later analyzed using conventional content analysis. Seven main themes emerged: coping, self-management, body image, social relationships, academic life, work life, and live donors. Study results revealed that the patients who received liver transplants during their childhood and adolescence used both effective and ineffective strategies to cope with the difficulties they faced during the transition period into adulthood. The parents experienced many problems: on learning of their child's need for a transplant, parents were advised that they should consider becoming a live donor. This very difficult decision was a source of great stress and required serious consideration. After transplantation the parents wanted their children to have autonomy but could not encourage them because of concerns for their health. | URI: | https://doi.org/10.1111/nhs.12358 https://hdl.handle.net/20.500.14365/2085 |
ISSN: | 1441-0745 1442-2018 |
Appears in Collections: | PubMed İndeksli Yayınlar Koleksiyonu / PubMed Indexed Publications Collection Scopus İndeksli Yayınlar Koleksiyonu / Scopus Indexed Publications Collection WoS İndeksli Yayınlar Koleksiyonu / WoS Indexed Publications Collection |
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